News

Post Stem Cell Update

It has been six months since receiving my first stem cell injection which contained just over a million new adult bone marrow stem cells. You can get stem cells from just about anywhere in your body: your bones, your placenta and your nose are chalked full of them. I received thirteen shots in total (13 million) That's a lot of new stem cells growing in my body, harvesting and teaching my own cells how to wake up and regenerate. 
Now, what I experience is a neuromuscular disorder known as Charcot Marie Tooth disease (CMT). That means that the myelin sheath that coats my nerves is severely malnourished, almost non-existent. This doesn't allow for the electrical signals in my brain to reach my extremities (legs and hands). In medical terms this is called peripheral neuropathy. The result is wasting and atrophy of the muscles despite any muscle building exercises which can have opposing symptoms. All of my life I've been able to walk and have also used a wheelchair but now find myself having to rely on it more and more. The word on the street is that there is no cure for this disease. However my intention for the stem cell treatment and all the fundraising I did to make that a reality, wasn't because I wanted a cure. I desired the strength needed to make this album, and create my dream of becoming a recording artist. I have only a few big things on my life's bucket list and today I can proudly cross this one off and continue up the path of self improvement and mastery. To me this is involution. To me, making art out of ones limitations is the cure. Music and art has allowed for a wider space of acceptance and deeper healing of my own mortality. Death has become like a close friend I keep in my back pocket. Anyone can chase good health and youth for years, but in the end, no matter who or what you are or what you experience, our bodies will die. We must ask ourselves: did I offer my truth through my most authentic heartfelt gifts to others and the world? Did I accept and love myself for what is?  And did I find a way to turn it into art? Into music?; the language of healing and celebration we can all learn to speak while our souls travel through the earth plane as humans.